The night of the dinner I was actually excited to speak. There were 300 people at the dinner and I was ready. Telling the story about Nemo is very close to my heart and brings out a LOT of emotions. However, I was able to keep myself from crying too much!!
I have gotten a lot of compliments on the speech and I was encouraged to share it since my friends and family were not there to hear me. So, with a little editing, here it is:
Welcome
survivors-a resilient bunch of people who show that we can live after cancer!
Welcome caregivers-and thank you for helping us get through this each day!
Thank you Renee for all of your hard work!
Rene thought
I’d be able to do this speech since I’m a high school history teacher and am
used to speaking in front of people. So in order for this to work, I am
picturing all of you as high school students!
This is my
third year doing relay. I never in a million years though I’d walk as a
survivor at relay. To be honest, before cancer I didn’t know much about relay.
Now here I am talking to you at the dinner to honor our survival, a dinner I
never wanted to meet the qualifications to be invited to but, because of
melanoma, here I am!!! I am a survivor!
I just
celebrated my third year with no evidence of disease after being diagnosed with
stage 3C melanoma in 2012. Melanoma is a lot more than just skin cancer. I
found out the hard way that it also invades your body as well.
My survivor story
is one of worlds colliding and dumb luck along with right place, right time and
the aligning of some planets I think. My story starts in an unlikely place-it
starts with my love of dogs.
7 years ago
we adopted a dog from a local rescue group. We kept bringing Carly back to
visit and were soon asked if we would foster dogs for the group. We’ve had 37
foster dogs over the last 6 years.
In the
spring of 2011, I spotted Nemo and his sister Dory cowering in their shelter
photo. They were in Martinsville Virginia at a shelter we take dogs from to
have a better chance of being adopted and to help make room for them to save
other dogs. They were the most frightened dogs I had ever seen and their short
video of them shaking cemented my commitment to get them to NJ. Nemo was, by a
well-timed miracle donation, being treated for heartworm which will kill a dog
if left untreated. Very few shelters will treat a HW dog and few rescues will
take them because treatment has a comma in the price tag.
100 days
later, Nemo and Dory were transported by a network of volunteer drivers to NJ.
There is a whole doggie underground railroad on the weekends moving dogs and
cats all over the country. Dave and I drove part of the trip to get Nemo and
Dory. We saved him and little did we know, he would save me.
We had two
basket cases called dogs. They knew nothing about living with people and needed
a LOT of love, training and time to learn how to cut loose and be dogs. We have
no idea what happened to them in Virginia but my vet is certain they were
abused and neglected. Nemo’s sister was
finally ready for adoption but he was always so fearful at adoption days and
was still a work in progress all summer and into the fall. He was still with us
months later and we didn’t quite know who would adopt him. Little did we know,
Nemo was already home. That Fall he became obsessed with a mole on my back. It
had been there forever and had never changed. He would start off sniffing it
and as time went on, he started digging his nose into the mole and eventually
Dave would have to pull him off because Nemo tried to remove the mole himself.
February of
2012 I noticed the mole had changed and took Nemo’s behavior toward the mole
more seriously. I called a dermatologist after reading that dogs can detect
cancer. I just picked a random local doctor off my approved insurance list (which,
in hindsight, I don’t recommend doing!) and called. The woman said the last
caller had just cancelled his appointment for Monday; I need to take that
appointment and not wait. I go in Monday morning and see the Chief Resident.
She calls in the lead doctor. Melanoma they say. Before I leave they schedule
me for removal that afternoon and also want me to participate in a clinical
trial for a confocal machine that takes microscopic images of the layers of the
mole. The dermatologist is one of three in the country who reads these reports
and this machine is one of 70.
I go home
for lunch, come back and I am called into a room full of doctors and
residents. They explain that this is
serious; results from the confocal show a big problem. The mole is not coming
off today. I need to see a surgeon and they have scheduled the appointment for
Monday. Everyone took photos of the mole. The Chief Resident threatens to hunt
me down if I don’t show for the surgeon appointment. I get the idea this is
more than just cut off the mole.
So I meet
with one of the top surgeons for this type of surgery. He’s fantastic and he and
his nurse explain everything. I then enter the world of tests-I’ve never had
any of these before besides an xray. I knew nothing about lymphosyntography,
CAT scans, PET scans or MRIs. I’m now flying by the seat of my pants getting a
crash course in Melanoma as I go through March’s tests and early April is when
I have my first surgery ever (besides wisdom teeth). Over a hundred stitches
later, the mole is gone from my back along with a few lymph nodes from each
armpit. I have an 8-9 inch scar on my back. I’m told by medical professionals
it is one of the best scars they’ve seen. Works for me.
Then more
surgery the next month to remove the remainder of the lymph nodes under my
right arm. A drain. Arm exercises that hurt like crazy. 3 ports in 2 years
because they quit on me. More surgery for a suspicious lymph node after a
mammogram.
My primary
care doctor tells me to walk and not let fear anger or sadness dwell in my
house. Get outside and walk he tells me. So I do. Rain, drain, humidity, the
day after each surgery, I’m walking and healing and I’m a survivor.
After each
surgery or procedure, Nemo was by my side protecting me day after day while I
was on the couch or in bed. He was, according to Dave, restless and anxious
whenever I was in the hospital. Once the stitches were dissolved from the mole
removal he sniffed my entire back, put his head on my leg, snuggled in and
sighed. Then he relaxed. I am told that if he ever becomes focused on something
again to call right away to have it checked. So far, so good, I can carry on with life as a
survivor.
Our rescue
group has fostered about 250 beagles released from research labs. Some have
been used in cancer research. We have personally fostered a few released
beagles. Nothing beats the sight of a beagle running in the grass for the first
time. I have a lot of friends and family who work in the pharmaceutical
industry. When I was offered a clinical trial or do nothing, I picked the trial-how
could I say no? There were really no drugs to treat my stage of melanoma. That
scared me and made me realize just how deadly this can be. So I signed the
clinical trial paperwork on my 44th birthday. I started treatment in
August. I was not willing to accept the 50% 5 year survival rate if I did
nothing.
I was still
teaching but life was getting hard. I had constant headaches and joint aches.
Turns out my pituitary blew out from treatment. I almost died. I was one of about 10 who had this happen so
no one was really thinking this was the problem. I ended up in the hospital and
finally my oncologist spoke to an endocrinologist who figured out I had the
teeny, tiny percentage side effect. Which is typical for me! When I asked the
doctor what the research showed for quality of life and such she put her hand
on my knee and said “Sandy, you are the research.” She was determined that I
would still be able to teach and live a normal life. I am also the survivor they
talk about as this happens to more and more patients. I’m my oncologist’s
poster child for life after pituitary failure.
I’m not
going to lie-there have been some really debilitating days, weeks and months
but I’m still here. I’ve had adrenal crashes that have landed me in the
hospital and it is unnerving to hear the ER doctors say they can’t handle me
here…..I need to go to their Trauma ER. Thankfully we live just minutes from
Robert Wood because that’s all it takes for me to go from being sick to
crashing.
I felt I had
two choices all along on this journey-let this destroy me or use the experience
for good and make my life better. I grabbed my imaginary warrior shield, some
really good mantras, rounded up my warrior friends and we warriored through
this. I swore there would be no bad days, but there could be bad moments,
hours, or parts of days. My students were always quick to remind me of that if
I seemed to be down or dragging.
So my worlds
collided. A rescue dog rescued me. I see
it as my mission to educate others about melanoma. My students have learned sun safety from me
but more importantly, have told me I am a role model for them when it comes to
not letting life defeat you. Knowing Rosemary and Fran was such a help-I had
people who knew what I was up against and were able to prepare me for things.
Fran told me the first year after diagnosis
would be my year from hell which helped me accept the sometimes daily trips to
the Cancer Institute for bloodwork, Iv’s, treatment and appointments as
temporary-life would eventually get to what I call the New Normal. It sure was a year from hell especially when
trying to navigate through the unknown while also dealing with the debilitating
pituitary issues. I’m so thankful I have a fantastic team of doctors,
wonderfully supportive friends, cheering family members, terrific students and
of course, my husband and chief caregiver, Dave. He had to do a lot of things
he never expected on this journey. We laughed, cried, and were afraid together.
Dave kept
reminding me that I have survived and it’s ok to live life. We have lived life.
Since diagnosis, we were part of a school trip to Paris. I have walked the
Brooklyn Bridge. I have participated in Miles for Melanoma events. I spoke at a
Relay fund raising walk held at my school. The school even held a melanoma walk
fundraiser for my Miles for Melanoma team. I have crossed several items off my
bucket list. Tomorrow I have orientation for graduate school. Friday I’m trying
a chair yoga class. I need to keep growing and trying and living. I know it’s
strange to say, but cancer has probably been one of the best things to happen
to me. I appreciate life so much more, I’ve met some amazing people and have
done things I would not normally do in life. I live life differently now.
So now I
look ahead and I look forward to the Woodbridge Relay. The township is my
second home since I teach at Kennedy HS in Iselin and I can’t wait to relay
with all of you and my students who can see me carry on as a fighter and a
survivor.
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